Help Us To Find Life-Improving Therapies and a Cure for Ataxia-Telangiectasia (A-T)

Finding a Cure Our Research Strategy

Our Approach:

In an urgent effort, our current focus is on funding innovative research strategies that look at A-T in new ways.

Accelerating A-T Research:

Delivering new research ideas into the hands of experts in drug discovery and clinical development to find treatments and a cure for A-T.

Latest Research News

Dec 31, 2024 Jan 24 @ 2:47 pm

2025 Could Be a Landmark Year for A-T Research

We’re feeling so optimistic about the new year, given the accelerated progress we’re seeing in our search for therapies—and ultimately, a cure—for ataxia-telangiectasia (A-T)!

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Dec 4, 2024 Jan 24 @ 2:47 pm

Encouraging Initial Results from an A-T Drug Repurposing Screen

We’re thrilled to share encouraging initial results from a study funded by the A-T Children’s Project and conducted by Charles River Laboratories.

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Dec 2, 2024 Jan 24 @ 2:47 pm

Jehlik Family Matched Giving Tuesday Donations for A-T

The Jeff Jehlik Memorial Fund Will Match Your “Giving Tuesday” Donation for A-T up to $100,000!

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Sep 4, 2024 Jan 24 @ 2:47 pm

Gene Editing for A-T – Funding Available

The A-T Children’s Project has available funds for a grant to test gene editing technologies to restore ATM protein function in cells from children with ataxia-telangiectasia.

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Jul 15, 2024 Jan 24 @ 2:47 pm

Gene Therapy for A-T Conference Announced For This Fall

The A-TCP is hosting an international Gene Therapy for A-T conference in November.

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Apr 22, 2024 Jan 24 @ 2:47 pm

NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid

Quince Therapeutics is advancing a phase 3 clinical trial to evaluate EryDex, a potential new treatment for ataxia-telangiectasia (A-T).

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Learn About Ataxia-Telangiectasia

About A-T

Hospitals & Clinics

Caregiver Resources

[My kids] are always so proud to ‘be helping the scientists find a cure for A-T’ and I am a little more hopeful that we are getting closer to real life interventions for Charlotte and all kids with A-T.”

Jennifer K.

A-T mom & research participant

The time that the doctors at the A-T Clinical Center devoted to us meant more to us than they'll ever know. We felt their passion and their hope, and it was wonderful to hear that our child means as much to them as he does to us. Though we were complete strangers to the group, everyone treated us like family.

Corie Sass

Elliot’s mom

Without the A-TCP, families would struggle to have that hope and optimism that their work and research provides. For this reason, the A-TCP needs to be nurtured just as much as the children and adults living with A-T. Their existence, with our support, makes the world shine a little brighter for families like ours in anticipation of more life-improving therapies and a cure for A-T.

Becky

A-T mom, fundraiser, and monthly donor

Connect With The A-T Community

A-T Family Welcome Form

Global A-T Family Data Platform

Reach Out to Us!

Stay in Touch

CureTeam at Disney

Racing & Raising Funds

The A-TCP and other A-T families will be participating in races at Walt Disney World in Florida and Disneyland in California this January!

Make An Impact

Help Raise Funds for the A-TCP

Join the grassroots fundraising efforts with families and friends of the A-TCP and help make A-T research happen!

Donate To Help Find A Cure

You can make a huge impact with your donation!

Attend Fundraising Events

Families and friends host events all over the country – raising funds to help find therapies and a cure for A-T.

Latest News

Jan 23, 2025 Jan 24 @ 2:47 pm

Evenings of Hope

Whether it’s an elegant evening of fine dining or a themed event that captures the imagination, dinner fundraisers show the power of connection and hope.

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Dec 31, 2024 Jan 24 @ 2:47 pm

2025 Could Be a Landmark Year for A-T Research

We’re feeling so optimistic about the new year, given the accelerated progress we’re seeing in our search for therapies—and ultimately, a cure—for ataxia-telangiectasia (A-T)!

more
Dec 4, 2024 Jan 24 @ 2:47 pm

Encouraging Initial Results from an A-T Drug Repurposing Screen

We’re thrilled to share encouraging initial results from a study funded by the A-T Children’s Project and conducted by Charles River Laboratories.

more

Upcoming Events

Oct 16, 2024 Feb 22 @ 5:00 pm - 10:00 pm Gene Bianchi Community Center

Charlotte’s Cure Dinner

Join us for Charlotte’s Cure Dinner!

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Jul 1, 2024 Apr 3 - Apr 6 WALT DISNEY WORLD® Resort

2025 runDisney Springtime Surprise Weekend

2025 runDisney Springtime Surprise Weekend

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Jun 5, 2024 Jan 30 - Feb 2 Disneyland® Resort

2025 Disneyland® Half Marathon Weekend Presented by HONDA

Join the A-T CureTeam for the 2025 Disneyland® Half Marathon Weekend presented by HONDA!

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