Help Us To Find Life-Improving Therapies and a Cure for Ataxia-Telangiectasia (A-T)

Finding a Cure Our Research Strategy

Our Approach:

In an urgent effort, our current focus is on funding innovative research strategies that look at A-T in new ways.

Accelerating A-T Research:

Delivering new research ideas into the hands of experts in drug discovery and clinical development to find treatments and a cure for A-T.

Latest Research News

Apr 29, 2025 May 14 @ 2:47 pm

N-Acetyl-L-Leucine Clinical Trial for A-T

IntraBio is conducting a clinical trial to test a product called N-Acetyl-L-Leucine in children and adults with A-T.

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Mar 10, 2025 May 14 @ 2:47 pm

New Edition of “Caring for People with A-T” Published

A new edition of the “Caring for People with A-T” guide has been published!

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Jan 31, 2025 May 14 @ 2:47 pm

Gene Editing for A-T Grant Awarded

We are pleased to announce that funds have been awarded to a researcher with Johns Hopkins University.

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Dec 31, 2024 May 14 @ 2:47 pm

2025 Could Be a Landmark Year for A-T Research

We’re feeling so optimistic about the new year, given the accelerated progress we’re seeing in our search for therapies—and ultimately, a cure—for ataxia-telangiectasia (A-T)!

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Dec 4, 2024 May 14 @ 2:47 pm

Encouraging Initial Results from an A-T Drug Repurposing Screen

We’re thrilled to share encouraging initial results from a study funded by the A-T Children’s Project and conducted by Charles River Laboratories.

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Dec 2, 2024 May 14 @ 2:47 pm

Jehlik Family Matched Giving Tuesday Donations for A-T

The Jeff Jehlik Memorial Fund Will Match Your “Giving Tuesday” Donation for A-T up to $100,000!

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Learn About Ataxia-Telangiectasia

About A-T

Hospitals & Clinics

Caregiver Resources

Without the A-TCP, families would struggle to have that hope and optimism that their work and research provides. For this reason, the A-TCP needs to be nurtured just as much as the children and adults living with A-T. Their existence, with our support, makes the world shine a little brighter for families like ours in anticipation of more life-improving therapies and a cure for A-T.

Becky

A-T mom, fundraiser, and monthly donor

The time that the doctors at the A-T Clinical Center devoted to us meant more to us than they'll ever know. We felt their passion and their hope, and it was wonderful to hear that our child means as much to them as he does to us. Though we were complete strangers to the group, everyone treated us like family.

Corie Sass

Elliot’s mom

[My kids] are always so proud to ‘be helping the scientists find a cure for A-T’ and I am a little more hopeful that we are getting closer to real life interventions for Charlotte and all kids with A-T.”

Jennifer K.

A-T mom & research participant

Connect With The A-T Community

A-T Family Welcome Form

Global A-T Family Data Platform

Reach Out to Us!

Stay in Touch

Beth's Birthday fundraiser

Donate Below

For My 60th Birthday - In Memory of Emily

Make An Impact

Help Raise Funds for the A-TCP

Join the grassroots fundraising efforts with families and friends of the A-TCP and help make A-T research happen!

Donate To Help Find A Cure

You can make a huge impact with your donation!

Attend Fundraising Events

Families and friends host events all over the country – raising funds to help find therapies and a cure for A-T.

Latest News

May 8, 2025 May 14 @ 2:47 pm

Sponsor a Song!

Fundraise for your race with a “sponsor a song” challenge!

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Apr 29, 2025 May 14 @ 2:47 pm

N-Acetyl-L-Leucine Clinical Trial for A-T

IntraBio is conducting a clinical trial to test a product called N-Acetyl-L-Leucine in children and adults with A-T.

more
Mar 10, 2025 May 14 @ 2:47 pm

New Edition of “Caring for People with A-T” Published

A new edition of the “Caring for People with A-T” guide has been published!

more

Upcoming Events

Mar 25, 2024 Jun 7 Crossroads Community

Chris’ Crusade for a Cure

Join us for Chris’ Crusade for a Cure!

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Jan 23, 2024 Jun 13 @ 10:30 am - 8:00 pm High Cliff Golf Course

Links for Lincoln

Join us for Links for Lincoln!

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Sep 20, 2023 Jun 21 Track & Field Complex at Mylan Park

Rhett’s Superhero Stomp Out A-T 5K

Join #TeamRhett in our third annual 5K run/walk and kids’ fun run to raise money for A-T research.

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