Help Us To Find Life-Improving Therapies and a Cure for Ataxia-Telangiectasia (A-T)

Finding a Cure Our Research Strategy

Our Approach:

In an urgent effort, our current focus is on funding innovative research strategies that look at A-T in new ways.

Accelerating A-T Research:

Delivering new research ideas into the hands of experts in drug discovery and clinical development to find treatments and a cure for A-T.

AI and A-T

How Artificial Intelligence is Helping Speed Up Research and Drug Development for A-T

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Latest Research News

Oct 10, 2025 Dec 11 @ 10:29 am

Replay of A-T Webinars

Find the replays of two webinars co-hosted with the National Ataxia Foundation!

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Jul 30, 2025 Dec 11 @ 10:29 am

Study of Involuntary Movements to Track A-T Disease Progression

A new study will focus on measuring the involuntary movements people with A-T experience.

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Apr 29, 2025 Dec 11 @ 10:29 am

N-Acetyl-L-Leucine Clinical Trial for A-T

IntraBio is conducting a clinical trial to test a product called N-Acetyl-L-Leucine in children and adults with A-T.

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Mar 10, 2025 Dec 11 @ 10:29 am

New Edition of “Caring for People with A-T” Published

A new edition of the “Caring for People with A-T” guide has been published!

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Jan 31, 2025 Dec 11 @ 10:29 am

Gene Editing for A-T Grant Awarded

We are pleased to announce that funds have been awarded to a researcher with Johns Hopkins University.

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Dec 31, 2024 Dec 11 @ 10:29 am

2025 Could Be a Landmark Year for A-T Research

We’re feeling so optimistic about the new year, given the accelerated progress we’re seeing in our search for therapies—and ultimately, a cure—for ataxia-telangiectasia (A-T)!

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Learn About Ataxia-Telangiectasia

About A-T

Hospitals & Clinics

Caregiver Resources

Without the A-TCP, families would struggle to have that hope and optimism that their work and research provides. For this reason, the A-TCP needs to be nurtured just as much as the children and adults living with A-T. Their existence, with our support, makes the world shine a little brighter for families like ours in anticipation of more life-improving therapies and a cure for A-T.

Becky

A-T mom, fundraiser, and monthly donor

The time that the doctors at the A-T Clinical Center devoted to us meant more to us than they'll ever know. We felt their passion and their hope, and it was wonderful to hear that our child means as much to them as he does to us. Though we were complete strangers to the group, everyone treated us like family.

Corie Sass

Elliot’s mom

[My kids] are always so proud to ‘be helping the scientists find a cure for A-T’ and I am a little more hopeful that we are getting closer to real life interventions for Charlotte and all kids with A-T.”

Jennifer K.

A-T mom & research participant

Connect With The A-T Community

A-T Family Welcome Form

Global A-T Family Data Platform

Reach Out to Us!

Stay in Touch

Walt Disney World Marathon Weekend

Join us in Orlando, FL!

Make An Impact

Fundraise

Help Raise Funds for the A-TCP

Join the grassroots fundraising efforts with families and friends of the A-TCP and help make A-T research happen!

Give

Donate To Help Find A Cure

You can make a huge impact with your donation!

Attend Events

Attend Fundraising Events

Families and friends host events all over the country – raising funds to help find therapies and a cure for A-T.

Latest News

Nov 21, 2025 Dec 11 @ 10:29 am

J.R.’s CureTeam at the Detroit Marathon!

J.R.’s CureTeam raises $36,000 at the Detroit Marathon!

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Oct 10, 2025 Dec 11 @ 10:29 am

Replay of A-T Webinars

Find the replays of two webinars co-hosted with the National Ataxia Foundation!

more
Oct 9, 2025 Dec 11 @ 10:29 am

Around and Around and Around for A-T!

A CureTeam fundraiser rode one round on a carousel for each $3 donation to the A-TCP!

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Upcoming Events

Sep 20, 2023 Jan 7, 2026 - Jan 11, 2026 WALT DISNEY WORLD® Resort

2026 Walt Disney World® Marathon Weekend

2026 Walt Disney World Marathon Weekend

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Jun 5, 2024 Jan 29, 2026 - Feb 1, 2026 Disneyland® Resort

2026 Disneyland® Half Marathon Weekend Presented by HONDA

Join the A-T CureTeam for the 2026 Disneyland® Half Marathon Weekend presented by HONDA!

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Sep 20, 2023 Feb 26, 2026 - Mar 2, 2026 WALT DISNEY WORLD® Resort

2026 Disney Princess Half Marathon Weekend

Join us for a fairy-tale weekend at the 2025 Princess Half Marathon!

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