Sara Reiling

A-T Caregiver Weekend 2024 Announced

Dec 15, 2023 Comments Off on A-T Caregiver Weekend 2024 Announced
Jul 21 @ 1:00 am

On December 15, the A-T Children’s Project sent the below email to parents inviting them to join us for the 2024 A-T Caregiver Weekend. We are looking forward to seeing everyone in April! Spend Time Connecting with Others Who Walk in Your Shoes Friday, April 12 at 7:00 PM – Sunday,…

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Giving Tuesday Update 2023

Nov 28, 2023 Comments Off on Giving Tuesday Update 2023
Jul 21 @ 1:00 am

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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Vaccine Recommendations

Oct 25, 2023 Comments Off on Vaccine Recommendations
Jul 21 @ 1:00 am

Dear A-T Families,

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A-T CureTeam’s Out-of-the-Box Fundraising Wins!

Oct 6, 2023 Comments Off on A-T CureTeam’s Out-of-the-Box Fundraising Wins!
Jul 21 @ 1:00 am

Fundraising can be anything you want it to be! Take a look at three recent fundraisers hosted by A-T CureTeam members that really took some out-of-the-box thinking. Rosie’s “Anything is Popsicle Ice Cream Stand” Rosie, a dedicated member of our CureTeam, has a heartfelt commitment to fundraising in memory of…

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Exon Skipping for A-T – Funding Available

Aug 25, 2023 Comments Off on Exon Skipping for A-T – Funding Available
Jul 21 @ 1:00 am

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to let you know of a funding opportunity through a partnership…

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Rising to the Challenge: Baking Up a Cure

Aug 24, 2023 Comments Off on Rising to the Challenge: Baking Up a Cure
Jul 21 @ 1:00 am

Last January, Judy, an A-T CureTeam member from Florida, participated in the Dopey Challenge (running all four races – 5K, 10K, half and full marathon!) at runDisney’s annual Marathon Weekend in Florida. Like many other CureTeam members who start out not knowing anyone with A-T, after attending the CureTeam pasta…

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Fueling Hope with JustGiving Fundraising

Aug 10, 2023 Comments Off on Fueling Hope with JustGiving Fundraising
Jul 21 @ 1:00 am

Learn how you can use JustGiving to create your very own custom fundraising page for the A-TCP!

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Join Us at Walt Disney World Marathon Weekend 2024

Jul 20, 2023 Comments Off on Join Us at Walt Disney World Marathon Weekend 2024
Jul 21 @ 1:00 am

We are excited to announce that this year’s pasta party is going to be held at Disney’s Coronado Springs Resort! Join us and be surrounded by A-T CureTeam members, A-T families and even some surprise Disney characters! By attending this event, you’ll be inspired by knowing that, together, we are…

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Groundbreaking Study Reports Significant Milestone for A-T Research

Jul 18, 2023 Comments Off on Groundbreaking Study Reports Significant Milestone for A-T Research
Jul 21 @ 1:00 am

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with A-T from the Global A-T Family Data Platform, creating an…

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Testing a Treatment for A-T Patients with Dystonia

Jun 20, 2023 Comments Off on Testing a Treatment for A-T Patients with Dystonia
Jul 21 @ 1:00 am

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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