Sara Reiling

Giving Tuesday 2020

Nov 30, 2020 Comments Off on Giving Tuesday 2020
Jul 21 @ 12:35 am
More

Virtual 5K Race Series

Aug 25, 2020 Comments Off on Virtual 5K Race Series
Jul 21 @ 12:35 am

Hello A-T CureTeam! Can you believe it has been two months since our last virtual 5k? It was so inspiring to have over 500 participants join together to move A-T research forward during this unprecedented time. Since then, we have been hard at work preparing for our next virtual adventure…

More

COVID-19 and Ataxia-Telangiectasia: Part 3

Aug 10, 2020 Comments Off on COVID-19 and Ataxia-Telangiectasia: Part 3
Jul 21 @ 12:35 am

A-T Parents, As promised, we are hosting another discussion about COVID-19 as the school year will be starting soon. The A-T Children’s Project is planning a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 3 – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T…

More

COVID-19 and Ataxia-Telangiectasia: Part 2

Jun 24, 2020 Comments Off on COVID-19 and Ataxia-Telangiectasia: Part 2
Jul 21 @ 12:35 am

A-T Parents, It’s time for another discussion about COVID-19 as communities reopen and parents consider how and when their families can safely return to work and school. The A-T Children’s Project has planned a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 2 – a conversation with:…

More

A Biomarker to Track Brain Cell Death in A-T Kids

Jun 4, 2020 Comments Off on A Biomarker to Track Brain Cell Death in A-T Kids
Jul 21 @ 12:35 am

Hi everyone, I hope you and your families are continuing to stay safe during the pandemic. Over the past year, you’ve heard me talk a lot about testing an approach called antisense oligonucleotide (ASO) gene therapy in a little girl with   A-T. She has continued to receive regular injections, and…

More

Walt Disney World Marathon and an A-T Virtual 5K

May 8, 2020 Comments Off on Walt Disney World Marathon and an A-T Virtual 5K
Jul 21 @ 12:35 am

To Our A-T CureTeam, We hope that you all are staying safe and healthy! Whether or not you’re ready to commit to run with us in January at Disney, please join us for our A-T Saturdays Virtual 5K – June 20, 2020. Over 100 A-T CureTeam members have signed up…

More

COVID-19 and Ataxia-Telangiectasia Webinar

Apr 27, 2020 Comments Off on COVID-19 and Ataxia-Telangiectasia Webinar
Jul 21 @ 12:35 am

A-T Parents, While we are not aware of anyone with A-T in the world who has contracted COVID-19, the situation in our communities definitely impacts A-T families as they stay home to keep safe. To help families navigate this new normal, the A-T Children’s Project hosted a special webinar on…

More

Homeschooling Support Webinar

Apr 18, 2020 Comments Off on Homeschooling Support Webinar
Jul 21 @ 12:35 am

A-T Parents, Hope you and yours are keeping safe and well! With schools across the United States and Canada closed, A-T parents are stepping up to manage homeschooling their kids.To help parents navigate this new normal, the A-T Children’s Project hosted a special webinar on Saturday, April 18th. Over 50…

More

A-T ASO Gene Therapy Trial Continues!

Apr 17, 2020 Comments Off on A-T ASO Gene Therapy Trial Continues!
Jul 21 @ 12:35 am

Hi everyone, I hope you and your family are doing well and keeping safe. As much as the COVID-19 pandemic has changed our world, I wanted to let you know that our ASO gene therapy trial for A-T – that you helped make possible – has not stopped. It continues…

More

Rare Disease Day 2020

Jan 23, 2020 Comments Off on Rare Disease Day 2020
Jul 21 @ 12:35 am
More