News

Art of Nursing Award

May 27, 2024 Comments Off on Art of Nursing Award
Jun 21 @ 1:06 am

A-T Clinic Nurse, Jenny Wright, RN is the recipient of the 2024 Art of Nursing award!

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Shining a Light on A-T at the IlluminATion Ball

Apr 22, 2024 Comments Off on Shining a Light on A-T at the IlluminATion Ball
Jun 21 @ 1:06 am

The A-TCP is hosting IlluminATion: A BioPharma Leadership Ball on May 11 in Boston to shine a light on A-T. Join us!

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NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid

Apr 22, 2024 Comments Off on NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid
Jun 21 @ 1:06 am

Quince Therapeutics is advancing a phase 3 clinical trial to evaluate EryDex, a potential new treatment for ataxia-telangiectasia (A-T).

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Measles Prevention in A-T: Recommendations from Dr. Lederman

Mar 22, 2024 Comments Off on Measles Prevention in A-T: Recommendations from Dr. Lederman
Jun 21 @ 1:06 am

Dr. Lederman of the A-T Clinical Center provides recommendations to keep people with A-T from catching measles.

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Looking Forward to Research Advances in 2024

Dec 30, 2023 Comments Off on Looking Forward to Research Advances in 2024
Jun 21 @ 1:06 am

As 2023 is wrapping up, we want to thank all of you who support the A-T Children’s Project and the impact you have in supporting our mission of finding life-improving therapies and a cure for A-T.

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A-T Biomarker Development Initiative Now Recruiting

Dec 18, 2023 Comments Off on A-T Biomarker Development Initiative Now Recruiting
Jun 21 @ 1:06 am

On December 18, the A-T Children’s Project sent out the below email to A-T parents in the United States inviting their children with and without A-T to participate in the A-T Biomarker Development Initiative. THE A-T BIOMARKER DEVELOPMENT INITIATIVE Join us in identifying desperately needed biomarkers to improve the development…

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A-T Caregiver Weekend 2024 Announced

Dec 15, 2023 Comments Off on A-T Caregiver Weekend 2024 Announced
Jun 21 @ 1:06 am

On December 15, the A-T Children’s Project sent the below email to parents inviting them to join us for the 2024 A-T Caregiver Weekend. We are looking forward to seeing everyone in April! Spend Time Connecting with Others Who Walk in Your Shoes Friday, April 12 at 7:00 PM – Sunday,…

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Giving Tuesday Update 2023

Nov 28, 2023 Comments Off on Giving Tuesday Update 2023
Jun 21 @ 1:06 am

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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Vaccine Recommendations

Oct 25, 2023 Comments Off on Vaccine Recommendations
Jun 21 @ 1:06 am

Dear A-T Families,

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Exon Skipping for A-T – Funding Available

Aug 25, 2023 Comments Off on Exon Skipping for A-T – Funding Available
Jun 21 @ 1:06 am

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to let you know of a funding opportunity through a partnership…

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