News

Gene Editing for A-T Grant Awarded

Jan 31, 2025 Comments Off on Gene Editing for A-T Grant Awarded
Feb 16 @ 12:39 pm

We are pleased to announce that funds have been awarded to a researcher with Johns Hopkins University.

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2025 Could Be a Landmark Year for A-T Research

Dec 31, 2024 Comments Off on 2025 Could Be a Landmark Year for A-T Research
Feb 16 @ 12:39 pm

We’re feeling so optimistic about the new year, given the accelerated progress we’re seeing in our search for therapies—and ultimately, a cure—for ataxia-telangiectasia (A-T)!

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Encouraging Initial Results from an A-T Drug Repurposing Screen

Dec 4, 2024 Comments Off on Encouraging Initial Results from an A-T Drug Repurposing Screen
Feb 16 @ 12:39 pm

We’re thrilled to share encouraging initial results from a study funded by the A-T Children’s Project and conducted by Charles River Laboratories.

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Jehlik Family Matched Giving Tuesday Donations for A-T

Dec 2, 2024 Comments Off on Jehlik Family Matched Giving Tuesday Donations for A-T
Feb 16 @ 12:39 pm

The Jeff Jehlik Memorial Fund Will Match Your “Giving Tuesday” Donation for A-T up to $100,000!

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Vaccine Recommendations for A-T Families

Oct 22, 2024 Comments Off on Vaccine Recommendations for A-T Families
Feb 16 @ 12:39 pm

The A-T Clinical Center has provided recommendations for vaccinations this flu season.

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Gene Editing for A-T – Funding Available

Sep 4, 2024 Comments Off on Gene Editing for A-T – Funding Available
Feb 16 @ 12:39 pm

The A-T Children’s Project has available funds for a grant to test gene editing technologies to restore ATM protein function in cells from children with ataxia-telangiectasia.

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Gene Therapy for A-T Conference Announced For This Fall

Jul 15, 2024 Comments Off on Gene Therapy for A-T Conference Announced For This Fall
Feb 16 @ 12:39 pm

The A-TCP is hosting an international Gene Therapy for A-T conference in November.

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Art of Nursing Award

May 27, 2024 Comments Off on Art of Nursing Award
Feb 16 @ 12:39 pm

A-T Clinic Nurse, Jenny Wright, RN is the recipient of the 2024 Art of Nursing award!

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Shining a Light on A-T at the IlluminATion Ball

Apr 22, 2024 Comments Off on Shining a Light on A-T at the IlluminATion Ball
Feb 16 @ 12:39 pm

The A-TCP is hosting IlluminATion: A BioPharma Leadership Ball on May 11 in Boston to shine a light on A-T. Join us!

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NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid

Apr 22, 2024 Comments Off on NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid
Feb 16 @ 12:39 pm

Quince Therapeutics is advancing a phase 3 clinical trial to evaluate EryDex, a potential new treatment for ataxia-telangiectasia (A-T).

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