News

Looking Forward to Research Advances in 2024

Dec 30, 2023 Comments Off on Looking Forward to Research Advances in 2024
Jan 19 @ 1:13 am

As 2023 is wrapping up, we want to thank all of you who support the A-T Children’s Project and the impact you have in supporting our mission of finding life-improving therapies and a cure for A-T.

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A-T Biomarker Development Initiative Now Recruiting

Dec 18, 2023 Comments Off on A-T Biomarker Development Initiative Now Recruiting
Jan 19 @ 1:13 am

On December 18, the A-T Children’s Project sent out the below email to A-T parents in the United States inviting their children with and without A-T to participate in the A-T Biomarker Development Initiative. THE A-T BIOMARKER DEVELOPMENT INITIATIVE Join us in identifying desperately needed biomarkers to improve the development…

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A-T Caregiver Weekend 2024 Announced

Dec 15, 2023 Comments Off on A-T Caregiver Weekend 2024 Announced
Jan 19 @ 1:13 am

On December 15, the A-T Children’s Project sent the below email to parents inviting them to join us for the 2024 A-T Caregiver Weekend. We are looking forward to seeing everyone in April! Spend Time Connecting with Others Who Walk in Your Shoes Friday, April 12 at 7:00 PM – Sunday,…

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Giving Tuesday Update 2023

Nov 28, 2023 Comments Off on Giving Tuesday Update 2023
Jan 19 @ 1:13 am

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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Vaccine Recommendations

Oct 25, 2023 Comments Off on Vaccine Recommendations
Jan 19 @ 1:13 am

The A-T Clinical Center offers advice on vaccines for the upcoming flu season.

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Exon Skipping for A-T – Funding Available

Aug 25, 2023 Comments Off on Exon Skipping for A-T – Funding Available
Jan 19 @ 1:13 am

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to let you know of a funding opportunity through a partnership…

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Join Us at Walt Disney World Marathon Weekend 2024

Jul 20, 2023 Comments Off on Join Us at Walt Disney World Marathon Weekend 2024
Jan 19 @ 1:13 am

We are excited to announce that this year’s pasta party is going to be held at Disney’s Coronado Springs Resort! Join us and be surrounded by A-T CureTeam members, A-T families and even some surprise Disney characters! By attending this event, you’ll be inspired by knowing that, together, we are…

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Groundbreaking Study Reports Significant Milestone for A-T Research

Jul 18, 2023 Comments Off on Groundbreaking Study Reports Significant Milestone for A-T Research
Jan 19 @ 1:13 am

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with A-T from the Global A-T Family Data Platform, creating an…

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Testing a Treatment for A-T Patients with Dystonia

Jun 20, 2023 Comments Off on Testing a Treatment for A-T Patients with Dystonia
Jan 19 @ 1:13 am

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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Disneyland Half Marathon Weekend is Back!

Feb 14, 2023 Comments Off on Disneyland Half Marathon Weekend is Back!
Jan 19 @ 1:13 am

Have you heard the news? Disneyland Half Marathon Weekend in Anaheim, CA is back and the A-T CureTeam will be there in January 2024! 

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