News

Join Us at Walt Disney World Marathon Weekend 2024

Jul 20, 2023 Comments Off on Join Us at Walt Disney World Marathon Weekend 2024
Jun 21 @ 12:06 am

We are excited to announce that this year’s pasta party is going to be held at Disney’s Coronado Springs Resort! Join us and be surrounded by A-T CureTeam members, A-T families and even some surprise Disney characters! By attending this event, you’ll be inspired by knowing that, together, we are…

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Groundbreaking Study Reports Significant Milestone for A-T Research

Jul 18, 2023 Comments Off on Groundbreaking Study Reports Significant Milestone for A-T Research
Jun 21 @ 12:06 am

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with A-T from the Global A-T Family Data Platform, creating an…

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Testing a Treatment for A-T Patients with Dystonia

Jun 20, 2023 Comments Off on Testing a Treatment for A-T Patients with Dystonia
Jun 21 @ 12:06 am

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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Disneyland Half Marathon Weekend is Back!

Feb 14, 2023 Comments Off on Disneyland Half Marathon Weekend is Back!
Jun 21 @ 12:06 am

Have you heard the news? Disneyland Half Marathon Weekend in Anaheim, CA is back and the A-T CureTeam will be there in January 2024! 

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Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research

Feb 8, 2023 Comments Off on Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research
Jun 21 @ 12:06 am

The A-T Children’s Project is excited to be part of this A-T research initiative. Please see the following press release from Adrestia Therapeutics:

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Giving Tuesday 2022

Nov 29, 2022 Comments Off on Giving Tuesday 2022
Jun 21 @ 12:06 am
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Until There’s a Cure, There’s Hope!

Nov 9, 2022 Comments Off on Until There’s a Cure, There’s Hope!
Jun 21 @ 12:06 am
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Vaccine Recommendations for A-T Families

Oct 13, 2022 Comments Off on Vaccine Recommendations for A-T Families
Jun 21 @ 12:06 am

Dear A-T Families, We wanted to share with you some expert advice we have been given about the vaccinations that our families should receive. The flu season is coming, and now is the time to get the flu vaccine. Dr. Howard Lederman, a respected immunologist and the Director of the…

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Drug Repurposing Screen for A-T Reaches Important Milestone

Aug 11, 2022 Comments Off on Drug Repurposing Screen for A-T Reaches Important Milestone
Jun 21 @ 12:06 am

Charles River Lab, a drug development services company collaborating with the A-T Children’s Project, has succeeded in developing a laboratory test or “assay” to rapidly evaluate thousands of approved drugs to learn if some of them can be repurposed for A-T. Because drugs emerging from the screening process with promising…

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Oncologist with A-T Expertise to Advise Local Cancer Doctors

Jun 10, 2022 Comments Off on Oncologist with A-T Expertise to Advise Local Cancer Doctors
Jun 21 @ 12:06 am

Dr. Richa Sharma, an oncologist at St. Jude Children’s Research Hospital who focuses on DNA repair disorders like A-T, has become available to consult with local doctors as they plan treatments for A-T patients who have developed cancer. Approximately 30% of people with A-T develop cancer. Lymphomas and leukemias (lymphoid…

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