News

Art of Nursing Award

May 27, 2024 Comments Off on Art of Nursing Award
May 24 @ 6:37 pm

A-T Clinic Nurse, Jenny Wright, RN is the recipient of the 2024 Art of Nursing award!

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Shining a Light on A-T at the IlluminATion Ball

Apr 22, 2024 Comments Off on Shining a Light on A-T at the IlluminATion Ball
May 24 @ 6:37 pm

The A-TCP is hosting IlluminATion: A BioPharma Leadership Ball on May 11 in Boston to shine a light on A-T. Join us!

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NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid

Apr 22, 2024 Comments Off on NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid
May 24 @ 6:37 pm

Quince Therapeutics is advancing a phase 3 clinical trial to evaluate EryDex, a potential new treatment for ataxia-telangiectasia (A-T).

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Looking Forward to Research Advances in 2024

Dec 30, 2023 Comments Off on Looking Forward to Research Advances in 2024
May 24 @ 6:37 pm

As 2023 is wrapping up, we want to thank all of you who support the A-T Children’s Project and the impact you have in supporting our mission of finding life-improving therapies and a cure for A-T.

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A-T Biomarker Development Initiative Now Recruiting

Dec 18, 2023 Comments Off on A-T Biomarker Development Initiative Now Recruiting
May 24 @ 6:37 pm

On December 18, the A-T Children’s Project sent out the below email to A-T parents in the United States inviting their children with and without A-T to participate in the A-T Biomarker Development Initiative. THE A-T BIOMARKER DEVELOPMENT INITIATIVE Join us in identifying desperately needed biomarkers to improve the development…

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A-T Caregiver Weekend 2024 Announced

Dec 15, 2023 Comments Off on A-T Caregiver Weekend 2024 Announced
May 24 @ 6:37 pm

On December 15, the A-T Children’s Project sent the below email to parents inviting them to join us for the 2024 A-T Caregiver Weekend. We are looking forward to seeing everyone in April! Spend Time Connecting with Others Who Walk in Your Shoes Friday, April 12 at 7:00 PM – Sunday,…

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Giving Tuesday Update 2023

Nov 28, 2023 Comments Off on Giving Tuesday Update 2023
May 24 @ 6:37 pm

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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Vaccine Recommendations

Oct 25, 2023 Comments Off on Vaccine Recommendations
May 24 @ 6:37 pm

The A-T Clinical Center offers advice on vaccines for the upcoming flu season.

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Exon Skipping for A-T – Funding Available

Aug 25, 2023 Comments Off on Exon Skipping for A-T – Funding Available
May 24 @ 6:37 pm

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to let you know of a funding opportunity through a partnership…

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Join Us at Walt Disney World Marathon Weekend 2024

Jul 20, 2023 Comments Off on Join Us at Walt Disney World Marathon Weekend 2024
May 24 @ 6:37 pm

We are excited to announce that this year’s pasta party is going to be held at Disney’s Coronado Springs Resort! Join us and be surrounded by A-T CureTeam members, A-T families and even some surprise Disney characters! By attending this event, you’ll be inspired by knowing that, together, we are…

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