News

Testing a Treatment for A-T Patients with Dystonia

Jun 20, 2023 Comments Off on Testing a Treatment for A-T Patients with Dystonia
Mar 27 @ 7:31 pm

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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Disneyland Half Marathon Weekend is Back!

Feb 14, 2023 Comments Off on Disneyland Half Marathon Weekend is Back!
Mar 27 @ 7:31 pm

Have you heard the news? Disneyland Half Marathon Weekend in Anaheim, CA is back and the A-T CureTeam will be there in January 2024! 

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Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research

Feb 8, 2023 Comments Off on Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research
Mar 27 @ 7:31 pm

The A-T Children’s Project is excited to be part of this A-T research initiative. Please see the following press release from Adrestia Therapeutics:

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Giving Tuesday 2022

Nov 29, 2022 Comments Off on Giving Tuesday 2022
Mar 27 @ 7:31 pm
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Until There’s a Cure, There’s Hope!

Nov 9, 2022 Comments Off on Until There’s a Cure, There’s Hope!
Mar 27 @ 7:31 pm
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Vaccine Recommendations for A-T Families

Oct 13, 2022 Comments Off on Vaccine Recommendations for A-T Families
Mar 27 @ 7:31 pm

Dear A-T Families, We wanted to share with you some expert advice we have been given about the vaccinations that our families should receive. The flu season is coming, and now is the time to get the flu vaccine. Dr. Howard Lederman, a respected immunologist and the Director of the…

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Drug Repurposing Screen for A-T Reaches Important Milestone

Aug 11, 2022 Comments Off on Drug Repurposing Screen for A-T Reaches Important Milestone
Mar 27 @ 7:31 pm

Charles River Lab, a drug development services company collaborating with the A-T Children’s Project, has succeeded in developing a laboratory test or “assay” to rapidly evaluate thousands of approved drugs to learn if some of them can be repurposed for A-T. Because drugs emerging from the screening process with promising…

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Oncologist with A-T Expertise to Advise Local Cancer Doctors

Jun 10, 2022 Comments Off on Oncologist with A-T Expertise to Advise Local Cancer Doctors
Mar 27 @ 7:31 pm

Dr. Richa Sharma, an oncologist at St. Jude Children’s Research Hospital who focuses on DNA repair disorders like A-T, has become available to consult with local doctors as they plan treatments for A-T patients who have developed cancer. Approximately 30% of people with A-T develop cancer. Lymphomas and leukemias (lymphoid…

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Join Us in June!

Jun 2, 2022 Comments Off on Join Us in June!
Mar 27 @ 7:31 pm

RYLIE’S ANGEL’S GOLF TOURNAMENT – June 6 In just a few days, the 10th annual Rylie’s Angel’s golf tournament is happening in southern California. Rylie is excited to see her dedicated and supportive Angels after a two-year hiatus! The event includes a day of golf with contests, raffles and awards…

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Promising Study Finds Ways to Measure A-T

Apr 14, 2022 Comments Off on Promising Study Finds Ways to Measure A-T
Mar 27 @ 7:31 pm

Dear Friends, We are excited to share the following update from Dr. Anoopum Gupta to the A-T families who have been participating in his project to find better ways to measure A-T. We are so grateful to him, to the families, and, of course, to our donors and fundraisers who…

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