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Join Us in June!

Jun 2, 2022 Comments Off on Join Us in June!
Jun 21 @ 12:19 am

RYLIE’S ANGEL’S GOLF TOURNAMENT – June 6 In just a few days, the 10th annual Rylie’s Angel’s golf tournament is happening in southern California. Rylie is excited to see her dedicated and supportive Angels after a two-year hiatus! The event includes a day of golf with contests, raffles and awards…

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Promising Study Finds Ways to Measure A-T

Apr 14, 2022 Comments Off on Promising Study Finds Ways to Measure A-T
Jun 21 @ 12:19 am

Dear Friends, We are excited to share the following update from Dr. Anoopum Gupta to the A-T families who have been participating in his project to find better ways to measure A-T. We are so grateful to him, to the families, and, of course, to our donors and fundraisers who…

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Help Accelerate A-T Research

Dec 31, 2021 Comments Off on Help Accelerate A-T Research
Jun 21 @ 12:19 am

As we head into 2022, research to find treatments for ataxia-telangiectasia (A-T) is moving more swiftly than ever. Please help us maintain momentum by making a year-end donation. Researchers at Boston Children’s Hospital are now treating a little girl with A-T using antisense oligonucleotide (ASO) gene therapy and will soon be expanding…

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Giving Tuesday 2021

Nov 30, 2021 Comments Off on Giving Tuesday 2021
Jun 21 @ 12:19 am

Sent December 22, 2021 Dear Friends, Your donation helped push us over the top, maximizing the $65,000 #GivingTuesday match! It is truly amazing – that in a year filled with cancelled in-person events and struggles getting back to normal, A-T research continues because of generous donations like yours on #GivingTuesday.…

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Genetic Counseling Project

Oct 1, 2021 Comments Off on Genetic Counseling Project
Jun 21 @ 12:19 am
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COVID-19 and Ataxia-Telangiectasia: Part 4

Aug 12, 2021 Comments Off on COVID-19 and Ataxia-Telangiectasia: Part 4
Jun 21 @ 12:19 am

On August 12, 2021, the A-T Children’s Project hosted a special webinar on COVID-19 and Ataxia-Telangiectasia – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins Children’s Center Jennifer Thornton – Executive Director of the A-T Children’s Project Watch…

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Large-Scale Drug Screening for A-T

Aug 6, 2021 Comments Off on Large-Scale Drug Screening for A-T
Jun 21 @ 12:19 am

Dear Friends, I hope you and your families are remaining safe as Covid continues to throw new challenges at us. While the pandemic has made funding and operating the A-T Children’s Project vastly more difficult, we’re continuing to drive forward innovative research, knowing that our kids will keep deteriorating a…

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Antibodies and COVID-19 Surveys

Jun 14, 2021 Comments Off on Antibodies and COVID-19 Surveys
Jun 21 @ 12:19 am

On June 9, 2021, the A-T Children’s Project sent the below email to A-T families about COVID-19 vaccines and antibody testing. The email asked families to fill out a brief survey if their family member with A-T had been vaccinated or been infected with COVID-19. Dear A-T Parents, We hope…

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ROBERT E. HERRMANN MEMORIAL FUND MATCH

Apr 9, 2021 Comments Off on ROBERT E. HERRMANN MEMORIAL FUND MATCH
Jun 21 @ 12:19 am

YOUR GIFT TO THE A-T CHILDREN’S PROJECT WILL BE MATCHED UP TO $50,000! The Robert E. Herrmann Memorial Fund was created by the Herrmann family to honor and remember Bob Herrmann who passed away on February 28, 2017.  “Uncle Bob” was a beloved family member who endured great struggles and tremendous…

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Intrabio – Clinical Trial Expansion

Mar 1, 2021 Comments Off on Intrabio – Clinical Trial Expansion
Jun 21 @ 12:19 am

On February 16, 2021, the A-T Children’s Project sent the below email to A-T families in the United States announcing that the pharmaceutical company IntraBio has expanded their clinical trial to test N-Acetyl-L-Leucine in A-T patients, and we will be helping with recruitment.  Dear A-T Parents, Last year, we let…

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