Research Updates

New Edition of “Caring for People with A-T” Published

Mar 10, 2025 Comments Off on New Edition of “Caring for People with A-T” Published
Apr 28 @ 11:33 am

A new edition of the “Caring for People with A-T” guide has been published!

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Gene Editing for A-T Grant Awarded

Jan 31, 2025 Comments Off on Gene Editing for A-T Grant Awarded
Apr 28 @ 11:33 am

We are pleased to announce that funds have been awarded to a researcher with Johns Hopkins University.

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2025 Could Be a Landmark Year for A-T Research

Dec 31, 2024 Comments Off on 2025 Could Be a Landmark Year for A-T Research
Apr 28 @ 11:33 am

We’re feeling so optimistic about the new year, given the accelerated progress we’re seeing in our search for therapies—and ultimately, a cure—for ataxia-telangiectasia (A-T)!

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Encouraging Initial Results from an A-T Drug Repurposing Screen

Dec 4, 2024 Comments Off on Encouraging Initial Results from an A-T Drug Repurposing Screen
Apr 28 @ 11:33 am

We’re thrilled to share encouraging initial results from a study funded by the A-T Children’s Project and conducted by Charles River Laboratories.

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Jehlik Family Matched Giving Tuesday Donations for A-T

Dec 2, 2024 Comments Off on Jehlik Family Matched Giving Tuesday Donations for A-T
Apr 28 @ 11:33 am

The Jeff Jehlik Memorial Fund Will Match Your “Giving Tuesday” Donation for A-T up to $100,000!

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Gene Editing for A-T – Funding Available

Sep 4, 2024 Comments Off on Gene Editing for A-T – Funding Available
Apr 28 @ 11:33 am

The A-T Children’s Project has available funds for a grant to test gene editing technologies to restore ATM protein function in cells from children with ataxia-telangiectasia.

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Gene Therapy for A-T Conference Announced For This Fall

Jul 15, 2024 Comments Off on Gene Therapy for A-T Conference Announced For This Fall
Apr 28 @ 11:33 am

The A-TCP is hosting an international Gene Therapy for A-T conference in November.

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NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid

Apr 22, 2024 Comments Off on NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid
Apr 28 @ 11:33 am

Quince Therapeutics is advancing a phase 3 clinical trial to evaluate EryDex, a potential new treatment for ataxia-telangiectasia (A-T).

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A-T Biomarker Development Initiative Now Recruiting

Dec 18, 2023 Comments Off on A-T Biomarker Development Initiative Now Recruiting
Apr 28 @ 11:33 am

On December 18, the A-T Children’s Project sent out the below email to A-T parents in the United States inviting their children with and without A-T to participate in the A-T Biomarker Development Initiative. THE A-T BIOMARKER DEVELOPMENT INITIATIVE Join us in identifying desperately needed biomarkers to improve the development…

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Giving Tuesday Update 2023

Nov 28, 2023 Comments Off on Giving Tuesday Update 2023
Apr 28 @ 11:33 am

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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