Research Updates

Giving Tuesday Update 2023

Nov 28, 2023 Comments Off on Giving Tuesday Update 2023
Apr 30 @ 1:13 pm

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

More

Exon Skipping for A-T – Funding Available

Aug 25, 2023 Comments Off on Exon Skipping for A-T – Funding Available
Apr 30 @ 1:13 pm

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to let you know of a funding opportunity through a partnership…

More

Groundbreaking Study Reports Significant Milestone for A-T Research

Jul 18, 2023 Comments Off on Groundbreaking Study Reports Significant Milestone for A-T Research
Apr 30 @ 1:13 pm

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with A-T from the Global A-T Family Data Platform, creating an…

More

Testing a Treatment for A-T Patients with Dystonia

Jun 20, 2023 Comments Off on Testing a Treatment for A-T Patients with Dystonia
Apr 30 @ 1:13 pm

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

More

Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research

Feb 8, 2023 Comments Off on Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research
Apr 30 @ 1:13 pm

The A-T Children’s Project is excited to be part of this A-T research initiative. Please see the following press release from Adrestia Therapeutics:

More

Giving Tuesday 2022

Nov 29, 2022 Comments Off on Giving Tuesday 2022
Apr 30 @ 1:13 pm
More

Drug Repurposing Screen for A-T Reaches Important Milestone

Aug 11, 2022 Comments Off on Drug Repurposing Screen for A-T Reaches Important Milestone
Apr 30 @ 1:13 pm

Charles River Lab, a drug development services company collaborating with the A-T Children’s Project, has succeeded in developing a laboratory test or “assay” to rapidly evaluate thousands of approved drugs to learn if some of them can be repurposed for A-T. Because drugs emerging from the screening process with promising…

More

Promising Study Finds Ways to Measure A-T

Apr 14, 2022 Comments Off on Promising Study Finds Ways to Measure A-T
Apr 30 @ 1:13 pm

Dear Friends, We are excited to share the following update from Dr. Anoopum Gupta to the A-T families who have been participating in his project to find better ways to measure A-T. We are so grateful to him, to the families, and, of course, to our donors and fundraisers who…

More

Making Strides in A-T Research – Thanks to You

Dec 31, 2020 Comments Off on Making Strides in A-T Research – Thanks to You
Apr 30 @ 1:13 pm

Dear Friends, This past year has been difficult for so many people. Every A-T family I have spoken with has been enormously grateful that, thanks to many of you, research has continued, providing the hope that sustains us. Here’s a quick look at our efforts this year: With the start…

More

A Biomarker to Track Brain Cell Death in A-T Kids

Jun 4, 2020 Comments Off on A Biomarker to Track Brain Cell Death in A-T Kids
Apr 30 @ 1:13 pm

Hi everyone, I hope you and your families are continuing to stay safe during the pandemic. Over the past year, you’ve heard me talk a lot about testing an approach called antisense oligonucleotide (ASO) gene therapy in a little girl with   A-T. She has continued to receive regular injections, and…

More