Rhett's Superhero Stomp Out A-T 5K
Join #TeamRhett in our third annual 5K run/walk and kids’ fun run to raise money for A-T research. Let’s STOMP OUT ataxia - telangiectasia (A-T)!
There will be vendors, fun kids' activities, a silent auction and more! If you are interested in donating to our silent auction, volunteering, or being a sponsor, please reach out to rhetts5k@gmail.com.
Event Day Itinerary:
7:00 A.M. - Volunteer show up | Vendor set up
8:00 A.M. - Race registration | Check in opens
8:30 A.M. - Pre-race introduction | Warm-up session begins
9:00 A.M. - Race starts for 5K run
9:10 A.M. - Walk/roll starts | Kids activities begin
10:00 A.M. - Kids fun run starts
10:10 A.M. - Post-race rewards ceremony
Packet Pick-Up
Registrants will be required to pick up their packets prior to the event at runner registration. If you are registered to receive a t-shirt or medal, these will be in your packet! Packet pickup can be the day of event or the day prior at a location to be provided later.
This race is included in 2024 Morgantown Area Grand Prix!
Superhero costumes encouraged!
Join Rhett in wearing your best Superhero costume!
Registration options
Registration is now closed.
All participants will receive a t-shirt if they register before May 31. Medals are only given to those participating in the 5K Run and Kids Fun Run. To receive your t-shirt or medal, you must register before May 31!
All event attendees must read and agree to our event waiver. No refunds Rain or Shine. We reserve the right to cancel in unfavorable conditions.
5K RUN – $35 – STARTS AT 9:00 AM
Timed 5K. Participants will be given a t-shirt, medal and race bib with chip to track time.
5K WALK/ROLL 5K – $25 – FOLLOWS THE RUN AT 9:00 AM
Untimed 5K. Participants will have the option to walk or roll. Participants will be given a t-shirt and unchipped bib. Medal is not included.
KIDS FUN RUN- $15 – STARTS AT 10:00 AM
1 lap around track with fun obstacles along the course. Participants will be given a t-shirt and medal. Unchipped bibs are not included.
VIRTUAL 5K RUN/WALK- $35 – WHEREVER/WHENEVER
Participate in a 5K run/walk anywhere! Participants will be mailed their event t-shirt. Medal and unchipped bib are not included in the virtual registration.
SPONSORSHIP OPPORTUNITIES
Sponsors must register by May 31 in order to have their logos on event materials. All sponsor t-shirts can be picked up at race registration. Please email us at fundraising@atcp.org if you are interested in becoming a sponsor.
$100 BRONZE SPONSOR
Sponsor listed on website | Video board display at the track | 1 Event t-shirt
$250 SILVER SPONSOR
Sponsor listed on website & event signage | Video board display at the track | Tent space for vendor | 1 Event t-shirt
$500 GOLD SPONSOR
Sponsor logo listed on website & event signage |Video board display at the track | Tent space for vendor | Name written on event t-shirt | Event registration for 2 participants (includes 2 t-shirts)
$1,000 PLATINUM SPONSOR
Sponsor logo listed on website & event signage | Video board display at the track | Tent space for vendor | Logo written on event t-shirt | Event registration for 4 participants (includes 4 t-shirts)
$5,000 TITLE SPONSOR
Sponsor logo listed on website, event signage & email communication with all runners and donors | Sponsor logo listed on Rhett's War on A-T Facebook banner leading up to event | Video board display at the track | Tent space for vendor | Logo written on front of event t-shirt | Event registration for 10 participants (includes 10 t-shirts) | Sponsor logo displayed during presentation of awards
Fair market values: Fair market value for all race participations is $0. Fair market value for all sponsorship levels is $0. Anything over the fair market value is tax deductible.
Rhett's Story
Rhett is 6 and he is the sweetest little human. Our story started when he was around the age of 2. Up until that point he had been growing normally and meeting his milestones. We started noticing however that he was more “wobbly” and “slobbery” than the other kids his age. He was clumsier on his feet. Some of his exam at times began to mimic Cerebral Palsy but his story didn’t fit. His pediatrician initially set us up with physical therapy and speech therapy for
evaluation. We were also seeing ENT and Pulmonary for his recurrent upper respiratory infections. After a few sessions with physical therapy, we knew we needed to see Neurology. Blood work then led to concerns for Muscular Dystrophy. We were all over the diagnosis map and so were our emotions. Labs, labs, more labs, and an MRI later we still had no idea what we were dealing with. Nothing seemed to fit. Frustrated, we then saw a neuromuscular specialist and different Neurologist who immediately sent us to Genetics. “This is not Cerebral Palsy.” “This is not Muscular Dystrophy.” Genetics started with a simple
panel of genes to rule out muscle disorders. When those results were inconclusive yet again, we broadened out the genetic panel to examine his full genome. Two years later with this DNA test, we found our defective ATM genes. Our biggest fears have come true that we are dealing with something that has no cure, no treatment, and is progressive. After receiving this heartbreaking diagnosis, I cannot begin to tell you how thankful we are for the A-T Children’s Project (A-TCP). Community is everything and this foundation has set us up with others in the United States and around the world that share our same story. The A-TCP is working vigorously with researchers around the globe to find a cure for ataxia - telangiectasia (A-T). So we are now on mission, and we are racing the clock. Thank YOU for helping us RACE to a cure! Your support is the hope we need and that these kids deserve! Your donations and time WILL make a difference. Now let’s rock, roll, and STOMP out A-T!
SPONSORS
