The Jeff Jehlik Memorial Fund Will Match Your "Giving Tuesday" Donation for A-T!
This Giving Tuesday, you have a chance to double your impact in our fight against ataxia-telangiectasia (A-T)! In loving memory of their son Jeff, who battled A-T and passed away nine years ago, Greg and Kim Jehlik are providing a wonderful $100,000 matching challenge through the Jeff Jehlik Memorial Fund.
When Jeff was diagnosed with A-T, his family turned their love for him into action, joining forces with other families to push for progress. And because of their determination – and support from people like you – the world looks different now. What seemed impossible then is now becoming a reality!
Just two weeks ago, scientists and clinicians from around the world reported exciting progress at our Gene Therapy for A-T Workshop in Boston, bringing more hope than ever. An antisense oligonucleotide gene therapy is being tested now in two children with A-T with promising results. And research teams around the world are launching additional initiatives so that several gene therapy technologies, as well as other approaches, can be applied to every child and young adult with A-T possible.
The meeting brought fresh energy and collaboration. Researchers not only explored ways to safely and efficiently replace or correct the A-T gene in our kids but made sure needed research tools were in place – things like cell lines made from A-T kids, brain tissue samples, in vitro assays, animal models, data platforms, neuroimaging, biomarkers, wearable devices, clinical scales, and natural history studies.
"We’re standing at the edge of major breakthroughs with multiple approaches, and we’re confident this match will enable researchers to move more quickly," Greg Jehlik said. "We want the recent progress to be expanded to a larger scale and rapidly translated into therapies that can improve the lives of A-T kids at all ages." Kim added, "Although Jeff is gone, all A-T families remain in our hearts and prayers, and we are confident that treatments and a cure are on the horizon through the A-T Children’s Project."
Please join the Jehlik family in honoring Jeff’s life and legacy this Giving Tuesday by keeping our momentum going. Every dollar you give between now and Friday, December 6th will be matched dollar for dollar, up to $100,000.
Give Today. Be Part of the Match. Be Part of the Cure.
If you are mailing a check or donating through a fund, please email us at fundraising@atcp.org or call us at +1.954.481.6611 so we can include your donation in the match. To donate in Canadian dollars, please click here. Thank you!
Join the A-T CureTeam
Disney Race Spots Available
Join the A-TCP and other A-T families at Walt Disney World in Florida or Disneyland in California this January!