In collaboration with Valerie Natale, PhD of the Forgotten Diseases Research Foundation, the A-T Clinical Center at Johns Hopkins, funded by the A-T Children’s Project, is analyzing growth data for patients with A-T who have been followed over time to develop growth curves for A-T. The collaborators will then examine the effects of disease severity, feeding tube placement, chronic infections, lung disease and cancer on growth. In addition to helping assess an individual child, better disease-specific growth curves will be useful for evaluating the effects of clinical interventions and potential therapies.
Contact Us
Related News
Feb 24, 2026Mar 17 @ 2:20 am
Lost Cleveland Memories’ 500th Presentation for the A-TCP!
Dennis has turned his love of history and storytelling into Lost Cleveland Memories, an incredibly successful fundraising effort
more
Feb 6, 2026Mar 17 @ 2:20 am
Race with the A-T CureTeam at Disney!
Announcing the CureTeam's Walt Disney World race schedule!
more
Jan 29, 2026Mar 17 @ 2:20 am
Disappointing Results from Quince’s Clinical Trial of eDSP in A-T
Quince Therapeutics reports topline results from their Phase 3 “NEAT” trial in A-T.
more
Jan 21, 2026Mar 17 @ 2:20 am
Press Release about Intrabio’s A-T Trial Results
IntraBio announces positive trial results of Levacetylleucine for the treatment of ataxia-telangiectasia.