Caregiver Resources

You are not alone. We offer a variety of resources to help in your journey as a caregiver of someone who has A-T.

Child Oslegers

Community

Learn more about Caregiver Weekends and how to connect with other A-T caregivers. 

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Child Brian 2

Guides

Read about the symptoms of A-T and clinical recommendations from A-T experts.

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Hospitals & Clinics

There are physicians and hospitals who have A-T experience. Let us introduce you. 

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Essential Files Reach out for hard copies!

Caring for People with A-T Guide

A complete guide to caring for people with A-T written by doctors at the A-T Clinical Center.

Quick Information Card

An information card for emergency rooms, school nurses, doctors and other healthcare professionals.

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  • Archive - A-T Clinical Handbook
Jan 19, 2024 Sep 16 @ 3:59 pm

A-T Carriers and Cancer Risk

There is an increased risk of cancer in A-T carriers necessitating enhanced cancer surveillance.

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Apr 9, 2023 Sep 16 @ 3:59 pm

A-T Clinical Center at Johns Hopkins Hospital

This multidisciplinary clinical center in Baltimore, Maryland focuses on the evaluation and treatment of patients with ataxia-telangiectasia.

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Apr 9, 2023 Sep 16 @ 3:59 pm

A-T Parents Rock

Parents from all over the world find support on Facebook in this closed, parent-run group.

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Aug 9, 2023 Sep 16 @ 3:59 pm

A-T Patient Quick Info Card

Quick info for the emergency room, urgent care, or other healthcare professionals.

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Oct 17, 2023 Sep 16 @ 3:59 pm

Adults with A-T

Adults with A-T have a unique set of medical and social problems.

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Oct 17, 2023 Sep 16 @ 3:59 pm

Cancer and A-T

People with A-T have an increased incidence (at least a 25% lifetime risk) of cancers.

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Oct 17, 2023 Sep 16 @ 3:59 pm

Cancer Consultations at St. Jude

Physicians may consult a hematologist at St. Jude who is familiar with cancer and A-T.

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Apr 9, 2023 Sep 16 @ 3:59 pm

Caregiver Weekend Retreats

These kid-free weekends hosted by the A-TCP give you an opportunity to meet other A-T caregivers and hear from leading clinicians.

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Apr 9, 2023 Sep 16 @ 3:59 pm

Caring For People With A-T

A 16-page handbook covering neurology, lung health, immunology, vaccine schedules, cancer, and more.

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