We’re excited to announce the release of the newest edition of the Caring for People with A-T guide, written by the doctors at the A-T Clinical Center at Johns Hopkins. This updated guide is longer and more comprehensive than ever, providing valuable information to help caregivers navigate the complexities of caring for someone with A-T.
In addition to the latest clinical recommendations on topics such as neurology, immunology, vaccine schedules and lung health, key updates in this version include:
- Recommended frequency of specialist visits
- Expanded focus on mental health
- Essential components of an annual physical exam
Professionally printed copies are available to families in the United States and Canada. Request copies here.
Whether you’re new to A-T or have been caring for a loved one for years, this guide is an important resource filled with expert insights and practical recommendations. Remember, each individual’s experience with A-T can be different, and it’s important to consult healthcare professionals for personal medical advice.
Please reach out to us with any questions at +1.954.481.6611 or info@atcp.org.
Thank you to the donors, families, doctors and fundraisers who made this publication possible!