News

Dec 18, 2023 Dec 13 @ 11:09 pm

A-T Biomarker Development Initiative Now Recruiting

On December 18, the A-T Children’s Project sent out the below email to A-T parents in the United States inviting their children with and without A-T to participate in the A-T Biomarker Development Initiative. THE A-T BIOMARKER DEVELOPMENT INITIATIVE Join…

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Dec 15, 2023 Dec 13 @ 11:09 pm

A-T Caregiver Weekend 2024 Announced

On December 15, the A-T Children’s Project sent the below email to parents inviting them to join us for the 2024 A-T Caregiver Weekend. We are looking forward to seeing everyone in April! Spend Time Connecting with Others Who Walk…

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Nov 28, 2023 Dec 13 @ 11:09 pm

Giving Tuesday Update 2023

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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Oct 25, 2023 Dec 13 @ 11:09 pm

Vaccine Recommendations

Dear A-T Families,

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Aug 25, 2023 Dec 13 @ 11:09 pm

Exon Skipping for A-T – Funding Available

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to…

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Jul 18, 2023 Dec 13 @ 11:09 pm

Groundbreaking Study Reports Significant Milestone for A-T Research

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with…

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Jun 20, 2023 Dec 13 @ 11:09 pm

Testing a Treatment for A-T Patients with Dystonia

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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Feb 8, 2023 Dec 13 @ 11:09 pm

Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research

The A-T Children’s Project is excited to be part of this A-T research initiative. Please see the following press release from Adrestia Therapeutics:

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Nov 29, 2022 Dec 13 @ 11:09 pm

Giving Tuesday 2022

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Oct 13, 2022 Dec 13 @ 11:09 pm

Vaccine Recommendations for A-T Families

Dear A-T Families, We wanted to share with you some expert advice we have been given about the vaccinations that our families should receive. The flu season is coming, and now is the time to get the flu vaccine. Dr….

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