News

Feb 29 @ 12:50 pm

Join Us at Walt Disney World Marathon Weekend 2024

We are excited to announce that this year’s pasta party is going to be held at Disney’s Coronado Springs Resort! Join us and be surrounded by A-T CureTeam members, A-T families and even some surprise Disney characters! By attending this…

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Feb 29 @ 12:50 pm

Groundbreaking Study Reports Significant Milestone for A-T Research

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with…

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Feb 29 @ 12:50 pm

Testing a Treatment for A-T Patients with Dystonia

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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Feb 29 @ 12:50 pm

Celebrate with Purpose!

We’d like you to meet Brianna, an A-T family friend who is helping to find a cure for A-T! She recently raised over $600 for A-T by partnering with local businesses.

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Feb 29 @ 12:50 pm

Disney Races Galore!

This runDisney race season the A-T Children’s Project is participating in four races! Everyone who runs is part of the A-T CureTeam and has the unique experience of running for kids who can’t and giving hope to the A-T community….

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Feb 29 @ 12:50 pm

A Busy April!

April is almost here and the spring fundraising season is about to kick off! The A-T Children’s Project and the A-T community are so grateful to have a full calendar of events as we welcome back seasoned fundraisers, first-time fundraisers and everyone in between.

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Feb 29 @ 12:50 pm

Schools Stand Up for Rare Disease Day!

Rare Disease Day was on February 28th and the A-T Children’s Project (A-TCP) was so impressed by how many schools took the opportunity to celebrate their local A-T Warrior and spread the word about A-T. 

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Feb 29 @ 12:50 pm

Jeans Doodle Cookies for Rare Disease Day

The A-T Children’s Project loves all fundraisers, but we especially love fundraisers that involve cookies! This New York bakery is celebrating Rare Disease Day by selling delicious sugar cookies shaped like jeans.

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Feb 29 @ 12:50 pm

Disneyland Half Marathon Weekend is Back!

Have you heard the news? Disneyland Half Marathon Weekend in Anaheim, CA is back and the A-T CureTeam will be there in January 2024! 

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Feb 29 @ 12:50 pm

Adrestia Therapeutics Partners with Patient Advocacy Groups to Further A-T Research

The A-T Children’s Project is excited to be part of this A-T research initiative. Please see the following press release from Adrestia Therapeutics:

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