News

Apr 22, 2024 Mar 22 @ 2:20 am

Shining a Light on A-T at the IlluminATion Ball

The A-TCP is hosting IlluminATion: A BioPharma Leadership Ball on May 11 in Boston to shine a light on A-T. Join us!

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Apr 22, 2024 Mar 22 @ 2:20 am

NEAT Study – Phase 3 Clinical Trial of EryDex, a Low-Dose Steroid

Quince Therapeutics is advancing a phase 3 clinical trial to evaluate EryDex, a potential new treatment for ataxia-telangiectasia (A-T).

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Dec 30, 2023 Mar 22 @ 2:20 am

Looking Forward to Research Advances in 2024

As 2023 is wrapping up, we want to thank all of you who support the A-T Children’s Project and the impact you have in supporting our mission of finding life-improving therapies and a cure for A-T.

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Dec 18, 2023 Mar 22 @ 2:20 am

A-T Biomarker Development Initiative Now Recruiting

On December 18, the A-T Children’s Project sent out the below email to A-T parents in the United States inviting their children with and without A-T to participate in the A-T Biomarker Development Initiative. THE A-T BIOMARKER DEVELOPMENT INITIATIVE Join…

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Dec 15, 2023 Mar 22 @ 2:20 am

A-T Caregiver Weekend 2024 Announced

On December 15, the A-T Children’s Project sent the below email to parents inviting them to join us for the 2024 A-T Caregiver Weekend. We are looking forward to seeing everyone in April! Spend Time Connecting with Others Who Walk…

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Nov 28, 2023 Mar 22 @ 2:20 am

Giving Tuesday Update 2023

It’s Giving Tuesday, and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

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Oct 25, 2023 Mar 22 @ 2:20 am

Vaccine Recommendations

The A-T Clinical Center offers advice on vaccines for the upcoming flu season.

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Aug 25, 2023 Mar 22 @ 2:20 am

Exon Skipping for A-T – Funding Available

On August 25, the A-T Children’s Project sent the below email to A-T researchers about available funds for a grant to see if exon skipping would make sense as a therapeutic approach for A-T. Dear A-T Researchers, We wanted to…

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Jul 18, 2023 Mar 22 @ 2:20 am

Groundbreaking Study Reports Significant Milestone for A-T Research

Timothy Yu, MD, PhD and his team at Boston Children’s Hospital just published a groundbreaking study in the prestigious science journal Nature, reporting a significant milestone for A-T research. The team analyzed the whole genome sequences of 235 individuals with…

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Jun 20, 2023 Mar 22 @ 2:20 am

Testing a Treatment for A-T Patients with Dystonia

Researchers would like to test a new non-surgical, non-invasive way to stimulate specific regions of the brain using ultrasound waves to see if it can help people with A-T who have dystonia.

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