News

Jun 23 @ 6:46 am

Genetic Counseling Project

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Jun 23 @ 6:46 am

COVID-19 and Ataxia-Telangiectasia: Part 4

On August 12, 2021, the A-T Children’s Project hosted a special webinar on COVID-19 and Ataxia-Telangiectasia – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins Children’s Center Jennifer…

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Jun 23 @ 6:46 am

Large-Scale Drug Screening for A-T

Dear Friends, I hope you and your families are remaining safe as Covid continues to throw new challenges at us. While the pandemic has made funding and operating the A-T Children’s Project vastly more difficult, we’re continuing to drive forward…

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Jun 23 @ 6:46 am

Antibodies and COVID-19 Surveys

On June 9, 2021, the A-T Children’s Project sent the below email to A-T families about COVID-19 vaccines and antibody testing. The email asked families to fill out a brief survey if their family member with A-T had been vaccinated…

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Jun 23 @ 6:46 am

ROBERT E. HERRMANN MEMORIAL FUND MATCH

YOUR GIFT TO THE A-T CHILDREN’S PROJECT WILL BE MATCHED UP TO $50,000! The Robert E. Herrmann Memorial Fund was created by the Herrmann family to honor and remember Bob Herrmann who passed away on February 28, 2017.  “Uncle Bob” was…

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Jun 23 @ 6:46 am

Intrabio – Clinical Trial Expansion

On February 16, 2021, the A-T Children’s Project sent the below email to A-T families in the United States announcing that the pharmaceutical company IntraBio has expanded their clinical trial to test N-Acetyl-L-Leucine in A-T patients, and we will be…

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Jun 23 @ 6:46 am

COVID-19 Vaccines and A-T

Additional information on COVID-19 vaccines and A-T can be found here. Hi A-T Parents, As promised, we are getting together for a discussion about COVID-19 and vaccines. The A-T Children’s Project has planned a special webinar that I will be…

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Jun 23 @ 6:46 am

Making Strides in A-T Research – Thanks to You

Dear Friends, This past year has been difficult for so many people. Every A-T family I have spoken with has been enormously grateful that, thanks to many of you, research has continued, providing the hope that sustains us. Here’s a…

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Jun 23 @ 6:46 am

COVID-19 and Ataxia-Telangiectasia: Part 3

A-T Parents, As promised, we are hosting another discussion about COVID-19 as the school year will be starting soon. The A-T Children’s Project is planning a special webinar that I will be moderating: COVID-19 and Ataxia-Telangiectasia: Part 3 – a conversation with:…

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Jun 23 @ 6:46 am

COVID-19 and Ataxia-Telangiectasia: Part 2

A-T Parents, It’s time for another discussion about COVID-19 as communities reopen and parents consider how and when their families can safely return to work and school. The A-T Children’s Project has planned a special webinar that I will be…

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