News

Oct 13, 2022 Jan 16 @ 4:12 am

Vaccine Recommendations for A-T Families

Dear A-T Families, We wanted to share with you some expert advice we have been given about the vaccinations that our families should receive. The flu season is coming, and now is the time to get the flu vaccine. Dr….

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Aug 11, 2022 Jan 16 @ 4:12 am

Drug Repurposing Screen for A-T Reaches Important Milestone

Charles River Lab, a drug development services company collaborating with the A-T Children’s Project, has succeeded in developing a laboratory test or “assay” to rapidly evaluate thousands of approved drugs to learn if some of them can be repurposed for…

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Jun 10, 2022 Jan 16 @ 4:12 am

Oncologist with A-T Expertise to Advise Local Cancer Doctors

Dr. Richa Sharma, an oncologist at St. Jude Children’s Research Hospital who focuses on DNA repair disorders like A-T, has become available to consult with local doctors as they plan treatments for A-T patients who have developed cancer. Approximately 30%…

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Apr 14, 2022 Jan 16 @ 4:12 am

Promising Study Finds Ways to Measure A-T

Dear Friends, We are excited to share the following update from Dr. Anoopum Gupta to the A-T families who have been participating in his project to find better ways to measure A-T. We are so grateful to him, to the…

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Dec 31, 2021 Jan 16 @ 4:12 am

Help Accelerate A-T Research

As we head into 2022, research to find treatments for ataxia-telangiectasia (A-T) is moving more swiftly than ever. Please help us maintain momentum by making a year-end donation. Researchers at Boston Children’s Hospital are now treating a little girl with A-T using…

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Nov 30, 2021 Jan 16 @ 4:12 am

Giving Tuesday 2021

Sent December 22, 2021 Dear Friends, Your donation helped push us over the top, maximizing the $65,000 #GivingTuesday match! It is truly amazing – that in a year filled with cancelled in-person events and struggles getting back to normal, A-T…

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Oct 1, 2021 Jan 16 @ 4:12 am

Genetic Counseling Project

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Aug 12, 2021 Jan 16 @ 4:12 am

COVID-19 and Ataxia-Telangiectasia: Part 4

On August 12, 2021, the A-T Children’s Project hosted a special webinar on COVID-19 and Ataxia-Telangiectasia – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins Children’s Center Jennifer…

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Aug 6, 2021 Jan 16 @ 4:12 am

Large-Scale Drug Screening for A-T

Dear Friends, I hope you and your families are remaining safe as Covid continues to throw new challenges at us. While the pandemic has made funding and operating the A-T Children’s Project vastly more difficult, we’re continuing to drive forward…

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Jun 14, 2021 Jan 16 @ 4:12 am

Antibodies and COVID-19 Surveys

On June 9, 2021, the A-T Children’s Project sent the below email to A-T families about COVID-19 vaccines and antibody testing. The email asked families to fill out a brief survey if their family member with A-T had been vaccinated…

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