News

Dec 31, 2021 Oct 11 @ 7:48 am

Help Accelerate A-T Research

As we head into 2022, research to find treatments for ataxia-telangiectasia (A-T) is moving more swiftly than ever. Please help us maintain momentum by making a year-end donation. Researchers at Boston Children’s Hospital are now treating a little girl with A-T using…

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Nov 30, 2021 Oct 11 @ 7:48 am

Giving Tuesday 2021

Sent December 22, 2021 Dear Friends, Your donation helped push us over the top, maximizing the $65,000 #GivingTuesday match! It is truly amazing – that in a year filled with cancelled in-person events and struggles getting back to normal, A-T…

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Oct 1, 2021 Oct 11 @ 7:48 am

Genetic Counseling Project

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Aug 12, 2021 Oct 11 @ 7:48 am

COVID-19 and Ataxia-Telangiectasia: Part 4

On August 12, 2021, the A-T Children’s Project hosted a special webinar on COVID-19 and Ataxia-Telangiectasia – a conversation with: Howard Lederman, MD, PhD – Pediatric Immunologist and Director of the A-T Clinical Center at Johns Hopkins Children’s Center Jennifer…

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Aug 6, 2021 Oct 11 @ 7:48 am

Large-Scale Drug Screening for A-T

Dear Friends, I hope you and your families are remaining safe as Covid continues to throw new challenges at us. While the pandemic has made funding and operating the A-T Children’s Project vastly more difficult, we’re continuing to drive forward…

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Jun 14, 2021 Oct 11 @ 7:48 am

Antibodies and COVID-19 Surveys

On June 9, 2021, the A-T Children’s Project sent the below email to A-T families about COVID-19 vaccines and antibody testing. The email asked families to fill out a brief survey if their family member with A-T had been vaccinated…

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Apr 9, 2021 Oct 11 @ 7:48 am

ROBERT E. HERRMANN MEMORIAL FUND MATCH

YOUR GIFT TO THE A-T CHILDREN’S PROJECT WILL BE MATCHED UP TO $50,000! The Robert E. Herrmann Memorial Fund was created by the Herrmann family to honor and remember Bob Herrmann who passed away on February 28, 2017.  “Uncle Bob” was…

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Mar 1, 2021 Oct 11 @ 7:48 am

Intrabio – Clinical Trial Expansion

On February 16, 2021, the A-T Children’s Project sent the below email to A-T families in the United States announcing that the pharmaceutical company IntraBio has expanded their clinical trial to test N-Acetyl-L-Leucine in A-T patients, and we will be…

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Jan 8, 2021 Oct 11 @ 7:48 am

COVID-19 Vaccines and A-T

Additional information on COVID-19 vaccines and A-T can be found here. Hi A-T Parents, As promised, we are getting together for a discussion about COVID-19 and vaccines. The A-T Children’s Project has planned a special webinar that I will be…

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Dec 31, 2020 Oct 11 @ 7:48 am

Making Strides in A-T Research – Thanks to You

Dear Friends, This past year has been difficult for so many people. Every A-T family I have spoken with has been enormously grateful that, thanks to many of you, research has continued, providing the hope that sustains us. Here’s a…

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