News

May 24 @ 6:56 am

Walt Disney World Marathon and an A-T Virtual 5K

To Our A-T CureTeam, We hope that you all are staying safe and healthy! Whether or not you’re ready to commit to run with us in January at Disney, please join us for our A-T Saturdays Virtual 5K – June…

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May 24 @ 6:56 am

COVID-19 and Ataxia-Telangiectasia Webinar

A-T Parents, While we are not aware of anyone with A-T in the world who has contracted COVID-19, the situation in our communities definitely impacts A-T families as they stay home to keep safe. To help families navigate this new…

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May 24 @ 6:56 am

Homeschooling Support Webinar

A-T Parents, Hope you and yours are keeping safe and well! With schools across the United States and Canada closed, A-T parents are stepping up to manage homeschooling their kids.To help parents navigate this new normal, the A-T Children’s Project…

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May 24 @ 6:56 am

A-T ASO Gene Therapy Trial Continues!

Hi everyone, I hope you and your family are doing well and keeping safe. As much as the COVID-19 pandemic has changed our world, I wanted to let you know that our ASO gene therapy trial for A-T – that…

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May 24 @ 6:56 am

COVID-19 Advice for A-T Families

Dear A-T Families, The A-T Children’s Project is eager for families of children and adults who have A-T to be as informed as possible as we all plan for the emerging COVID-19 virus outbreak. We strongly suggest that A-T families…

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May 24 @ 6:56 am

Rare Disease Day 2020

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May 24 @ 6:56 am

A Clinical Trial of Nicotinamide Riboside (Niagen®) in A-T

Michel Willemsen, MD, PhD and his colleagues at Radboud University in the Netherlands have begun an “open-label” clinical trial of nicotinamide riboside in children and young adults with ataxia telangiectasia (A-T). With financial support from the A-T Children’s Project, Dr….

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May 24 @ 6:56 am

FDA Approves Clinical Testing of an Amino Acid in A-T

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May 24 @ 6:56 am

Update on Testing ASO Gene Therapy in A-T Kids

As this historic milestone approaches, we can’t help but feel a renewed sense of urgency to reach our goal.  And, we never forget for even a moment that this project would not be happening without the wonderful support we’ve received…

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May 24 @ 6:56 am

How Do Cells Change and Die in the Human A-T Brain?

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