Resources

PET Scan/FMRI Study

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Participants with A-T demonstrated lower brain activity or metabolism in the cerebellum as compared to control participants.

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Baclofen Study

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At the dose tested, Baclofen did not have a significant effect on tremor, eye movement or balance deficits.

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Brain and Tissue Bank

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A-T brain tissue and other tissues may be available for research purposes.

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Betamethasone Trials

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These trials studied whether a low dose betamethasone would reduce neurological symptoms associated with A-T.

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Effect of Amantadine on Movement Disorder in A-T

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This trial was performed to see if amantadine sulphate improves ataxia or other movement disorders associated with A-T.

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Global A-T Family Data Platform

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The Platform is a patient-driven effort through which data about people with A-T are shared with researchers.

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Automated Gait Analysis

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Tools to measure the neurological problems in mice with ataxia-telangiectasia (A-T)

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Mouse Models

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A-T mouse models are available from specific institutions and researchers.

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Pulmonary Function Study

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This study seeks to establish the natural history of pulmonary function decline in the A-T population.

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Host an Event Guidelines

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Learn how the A-TCP helps with event contracts, waivers and insurance.

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