Researchers and Clinicians

Quick Reference – Clinical Care for Ataxia-Telangiectasia

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Reference card for physicians treating patients with A-T

NEAT

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This trial will evaluate the effects of EryDex in patients with A-T.

Mouse Models

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A-T mouse models are available from specific institutions and researchers.

PubMed Research Publications

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A free resource for biomedical and life sciences literature.

Research Grant Letter of Intent Form

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A Letter of Intent is required prior to submission of a full-length proposal.

Research Grant Proposal Application Form

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If invited to complete a full proposal, applicants must submit the form as a PDF to grants@atcp.org.

Nicotinamide Riboside (Niagen) Proof-of-concept Study

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This trial in the Netherlands looked at the effects of nicotinamide ribose as a potential treatment for people with A-T.

PET Scan/FMRI Study

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Participants with A-T demonstrated lower brain activity or metabolism in the cerebellum as compared to control participants.

Baclofen Study

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At the dose tested, Baclofen did not have a significant effect on tremor, eye movement or balance deficits.

Dexamethasone Trial

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This open label study was performed to assess the safety and tolerability of the EryDex System in people with A-T.