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Jan 13 @ 5:44 pm

Cancer and A-T

People with A-T have an increased incidence (at least a 25% lifetime risk) of cancers.

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Jan 13 @ 5:44 pm

Cancer Consultations at St. Jude

Physicians may consult a hematologist at St. Jude who is familiar with cancer and A-T.

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Jan 13 @ 5:44 pm

Caregiver Weekend Retreats

These kid-free weekends hosted by the A-TCP give you an opportunity to meet other A-T caregivers and hear from leading clinicians.

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Jan 13 @ 5:44 pm

Caring For People With A-T

A 16-page handbook covering neurology, lung health, immunology, vaccine schedules, cancer, and more.

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Jan 13 @ 5:44 pm

Cell Bank

The A-TCP has established a program for the collection, submission and maintenance of cell lines from patients with A-T.

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Jan 13 @ 5:44 pm

Cerebrospinal Fluid Biomarker Study

Among the 204 identified CSF proteins, 13 showed significant changes in A-T patients versus control samples.

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Jan 13 @ 5:44 pm

Chapter 1: Ataxia-Telangiectasia Overview

A-T signs and symptoms are distinctive yet vary widely in severity from person to person.

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Jan 13 @ 5:44 pm

Chapter 10: General Principles of Rehabilitation

Rehabilitation has a great deal to offer persons with A-T and their families.

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Jan 13 @ 5:44 pm

Chapter 11: Mobility and Gross Motor Abilities – Physical Therapy

Physical therapists help with gross motor difficulties, including problems with walking, mobility and posture.

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Jan 13 @ 5:44 pm

Chapter 12: Activities of Daily Living and Fine Motor Abilities – OT Recommendations

The role of occupational therapy is ongoing as new interests & needs arise and A-T brings new burdens of neurologic impairment.

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Jan 13 @ 5:44 pm

Chapter 13: School Learning and Social/Emotional Adjustment

Children with A-T, just as all children, have variability in their cognitive abilities.

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Jan 13 @ 5:44 pm

Chapter 14: Speech and Language

Speech and language abilities vary from one person with A-T to another, and vary over time in individual patients.

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